Request for Comments on Issues of Privacy and Access With Regard to Human Genome Sequence Data | Presidential Commission for the Study of Bioethical Issues
http://bioethics.gov/cms/node/676
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SUMMARY: The Presidential Commission for the Study of Bioethical Issues is requesting public comment on the ethical issues raised by the ready availability of large-scale human genome sequence data, with regard to privacy and data access and the balancing of individual and societal interests.
DATES: To assure consideration, comments must be received by May 25, 2012. … The Commission is particularly interested in policies, practices, research, and perspectives on issues of privacy and data access as they relate to the integration of large-scale human genome sequencing into research and clinical care.
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